A Patient-Centered Complex Care Research Agenda
Hello everyone!
I am proud to announce PFCCpartners was recently a project partner on the development of the Patient-Centered Complex Care Research Agenda. PFCCpartners led the engagement activities for the project, and sincerely thank each of the patient and family caregivers who partnered on this project.
The Research Agenda outlines three core strategies and corresponding action steps to build a stronger, more coordinated, and patient-centered complex care evidence base.
1. Meaningfully Partner With Patients and Communities in Research
2. Focus on a Prioritized Set of Research Questions
3. Measure Outcomes in a More Consistent and Patient-Centered Way
I would like to personally invite you to review the Research Agenda and the recording of our September Community of Practice Workshop discussing its development.
Stephen Hoy
PFCCpartners, Chief Operations Officer
About the PFCCpartners and CHCS collaboration
"Nothing about us without us" became the motto during the monthly Patient Family Advisory Board (PFAB) planning and workgroup meetings. The group that worked on this project showed theory in action through active participation and listening, transparency, hard conversations and discussions that ended with meaningful resolutions. True collaboration was born was challenging questions and intense dialogue.
CHCS was committed to bringing and including the voices and what matters most of the lived experience experts. This can be seen in the research agenda recommendations, most pronounced with the measurement domain.
As the liaison on this project, it was refreshing to see every person involved have an "ah ha" growth moment.
Naomi Williams
Patient Family Engagement Specialist, PFCCpartners
A Patient-Centered Complex Care Research Agenda
"A guide to build the complex care evidence base by prioritizing what matters most to people with complex health and social needs."
ABOUT THE RESEARCH AGENDA
Success in complex care programs has traditionally been defined by reductions in health care costs or unnecessary utilization and not by what matters most to patients. There is much more for complex care to learn about which services work best for which groups of people and how it can best support patient goals.
Recognizing this need, the Center for Health Care Strategies (CHCS) developed the Patient-Centered Complex Care Research Agenda with funding from the Patient-Centered Outcomes Research Institute. The Research Agenda was co-created by more than 100 partners, including patients with lived expertise of complex care, researchers, providers, and health care system leaders.
ABOUT CHCS
The Center for Health Care Strategies (CHCS) is a policy design and implementation partner devoted to improving outcomes for people enrolled in Medicaid. We connect people and ideas to spark insights, build expertise, strengthen leadership, and spread innovations. CHCS works to improve health outcomes for the millions of people in the U.S. who face serious barriers to well-being, like poverty, complex health and social needs, and systemic racism.
Lessons Learned from Engaging People with Lived Experience to Inform Complex Care Research
Presented by:
Naomi Williams
Patient Family Engagement Specialist, PFCCpartners
RECORDED: Friday, September 30
Watch this month's PFCCpartners Community of Practice Workshop to learn about our recent collaboration with the Center for Health Care Strategies (CHCS). PFCCpartners supported the development of their Patient Family Advisory Board (PFAB) to be engaged throughout the development of the CHCS Research Agenda. The CHCS PFAB includes people with complex health care needs (including medical, mental health and/or substance use conditions) and social needs (e.g., housing, food access, and transportation).
