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Patient Centered Outcomes Research Institute Engagement Tool and Resource Repository

Patient Priorities Care

Patient Priorities Care have redesigned the resources page with newly added tools to help clinicians identify patient’s health priorities, and align those priorities with decision-making and care. Resources are also available to guide patients and caregivers in the Patient Priorities Care approach. Visit for more information.

NQF Issues Vital Guidance to Improve Shared Decision Making Between Patients and Healthcare Providers

About NQF

The National Quality Forum (NQF) is the nation’s resource for healthcare quality measurement and improvement. NQF is an independent, not-for-profit, membership-based organization that brings healthcare stakeholders together to recommend quality measures and improvement strategies that reduce costs and help patients get better care.

About NQP

National Quality Partners™ (NQP™), an NQF initiative, is an active forum for NQF members to connect, collaborate, and provide thought leadership on quality improvement strategies to achieve national health and healthcare quality goals. NQP leads practical, action-oriented initiatives to drive meaningful and lasting change for patients and their families. Learn more at

Patient and Family Advisor (PFA) Survey

The PFA Evaluation of the PFAC can be used by Advisory Program Facilitators who are looking to gauge the Advisor’s perception of the Advisory efforts. This tool is helpful for organizations who are looking to re-energize their Advisory Programs. It will help organizations understand and address some common issues that more mature programs encounter.

Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care

PFCCpartners is proud to have participated on the Scientific Advisory Panel & Co Authored a new National Academy of Medicine Discussion Paper entitled “Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care“.
This paper is the result of over a year of collaborative work performed under the auspices of the National Academy of Medicine’s Care Culture and Decision-Making Innovation Collaborative and led by Planetree. In the paper, the co-authors assert that a cultural shift to “patient and family engaged care” is an essential driver to achieving the Quadruple Aim outcomes of better culture, better care, better health, and lower costs, and lay out a novel Guiding Framework for creating and sustaining a culture of patient and family engaged care that is grounded in both scientific evidence and the lived experience of patients, their care partners, practitioners, and health system leaders.

Articles of support for person family engaged care

Adding Value by Talking More by Robert S. Kaplan, Ph.D., Derek A. Haas, M.B.A., and Jonathan Warsh, Ph.D. (NEJM)

The Importance of Being by Abraham Verghese (Health Affairs)

The Conversation Project

The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.  It’s not easy to talk about how you want the end of your life to be. But it’s one of the most important conversations you can have with your loved ones.  The Conversation Project will help you get your thoughts together and to have the conversation.

AIR Roadmap to Patient Family Engagement in Healthcare

10 Questions You Should Ask Your Doctor – AHRQ

Patients and families authentically partnering in research with support from PCORI

Stewarding Regional Health Transformation – A Guide for Changemakers

Transforming our regional health means whole-scale redesign and integration of all the forces that support health and well being. To truly redesign local systems for radically better health, care, and economic prosperity in their regions, members of collaborative leadership teams must establish high aspirations and steward a change effort through distinct phases of transformation. They must create the long-term structures for active engagement of all the relevant participants—including residents—in stewarding shared resources. This Stewardship Guide is meant to help individual leaders and multi-sector collaborations create and sustain successful stewardship structures and change processes to lead regional transformation. It is meant for those who are looking to redesign their systems of health for radically better performance—creating and achieving a transformed system that will help individuals, families, and neighborhoods thrive with better health, lower costs, increased access to care, and improved equity and productivity for all.

Health Literacy Tips by Jennifer Pearce

New Rules for Radical Redesign in Health Care

Quality Innovation Network (QIN) videos

Quality Improvement for Regular People

Healthcare QI Models

Patient Partnerships and Outcomes Brief Literature Review – Partnered with Aefina

Should money come into it?

The Change Foundation – March, 2015.  A tool for deciding whether to pay patient-engagement participants.

PFE Guidelines Ped Pts in Adult Hospitals

A practical Guide for Parent’s and Patients by Chrissie Blackburn, Libby Hoy and Lisa Morrise.

Disparities Solutions Center

Learn about the impactful work going on at the Disparities Solutions Center.  Take a look at the informative Guide produced to support efforts to reduce disparities in healthcare.

Patient-Centered Primary Care Collaborative (PCPCC)

Founded in 2006, Patient-Centered Primary Care Collaborative (PCPCC) the is a not-for-profit membership organization dedicated to advancing an effective and efficient health system built on a strong foundation of primary care and the patient-centered medical home. The PCPCC achieves its mission through the work of its five Stakeholder Centers, led by experts and thought leaders dedicated to transforming the U.S. health care system through delivery reform, payment reform, patient engagement, and benefit redesign. Today, PCPCC’s membership has grown to over 1,200 diverse stakeholder organizations who represent health care providers across the care continuum, payers and purchasers, and patients and their families.

Patient Family Health Care Leaders Resource Compendium July 2015

Institute of Medicine

Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations

“Strengthening the Role of Patient & Family Leaders in Healthcare Improvement”

PFCCpartners cited as an expert in the Institute of Medicine’s report

Guide to Patient and Family Engagement in Hospital Quality and Safety AHRQ

AHRQ Toolkit

Intro to NQF Patient Passport model 

National Quality Forum Patient Engagement Team

Now available for free download in Apple Store and in the Android Market
For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCC Partners.  

PFCC Resource Organizations

Agency for Healthcare Research and Quality

American Hospital Association

Empowered Patients Coalition

Family Resource Center Network of Los Angeles County

Family Voices

Institute for Patient Family Centered Care

Partnership for Patients

Patient Advocate Foundation

Patient-Centered Outcomes Research Institute


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