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Resources

National Patient Safety Foundation (NPSF) Call to Action

Preventable Health Care Harm Is a Public Health Crisis and Patient Safety Requires a Coordinated Public Health Response

 

National Academy of Medicine Discussion Paper 

PFCCpartners is proud to have participated on the Scientific Advisory Panel & Co Authored a new National Academy of Medicine Discussion Paper entitled “Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care“.
This paper is the result of over a year of collaborative work performed under the auspices of the National Academy of Medicine’s Care Culture and Decision-Making Innovation Collaborative and led by Planetree. In the paper, the co-authors assert that a cultural shift to “patient and family engaged care” is an essential driver to achieving the Quadruple Aim outcomes of better culture, better care, better health, and lower costs, and lay out a novel Guiding Framework for creating and sustaining a culture of patient and family engaged care that is grounded in both scientific evidence and the lived experience of patients, their care partners, practitioners, and health system leaders.

Patient Engagement: Catalyzing Improvement and Innovation in Healthcare

Safety Across the Board Guide

Partnership for Patients has collaboratively produced this guide to creating a culture of safety in hospitals

 

Articles of support for person family engaged care

Adding Value by Talking More by Robert S. Kaplan, Ph.D., Derek A. Haas, M.B.A., and Jonathan Warsh, Ph.D. (NEJM)

The Importance of Being by Abraham Verghese (Health Affairs)

 

The Conversation Project

The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.  It’s not easy to talk about how you want the end of your life to be. But it’s one of the most important conversations you can have with your loved ones.  The Conversation Project will help you get your thoughts together and to have the conversation.

Workplan Template

We utilize the Workplan in an annual planning session with each of our member health organizations.  This allows us the ability to meet organizations where they are in the journey to integrating a person centered healthcare model.  It’s important to recognize resources currently available in your organization to support your integration efforts.  For more about this tool or about Membership benefitsworkplan-template please contact Stephen Hoy at stephen@pfccpartners.com

 

Framework for Person Family Engaged Care

 

 

American College of Physicians (ACP) Patient Education Resources

When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed.  ACP has produced a series of patient education resources to support patient management of common issues.  These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.

AIR Roadmap to Patient Family Engagement in Healthcare

10 Questions You Should Ask Your Doctor – AHRQ

 

Strategic Innovation Engine

Are you working to transform health care? CMS’ Quality Improvement Organization (QIO) program recently established the Stategic Innovation Engine (SIE) to advance health care quality. Its mission is to identify, evaluate and spread proven innovations to achieve the three-part aim of better care, healthier people/communities, and smarter spending.

If your organization has created or adapted an innovative practice in any of these five topics that has improved patient care, the SIE wants to hear from you.

  • Managing multiple chronic conditions
  • Engaging patients and families as active members of the care team
  • Coordinating care within and across settings
  • Streamlining patient flow
  • Integrating behavioral health into care

Submit an application for consideration of your practice to be spread within the health care community. You’ll receive public recognition for the work you’ve done and broad dissemination of your practice through SIE Communications channels to foster spread throughout the health care community.  We will brand the practice with the organization’s name and provide a web badge acknowledging its selection as an SIE-approved practice.

Partnership for Patients Resources

American College of Physicians (ACP) Patient Education Resources

When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed.  ACP has produced a series of patient education resources to support patient management of common issues.  These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.

CAHPS Cultural Competence Item Set

Patients and families authentically partnering in research with support from PCORI

Stewarding Regional Health Transformation – A Guide for Changemakers

Transforming our regional health means whole-scale redesign and integration of all the forces that support health and wellbeing. To truly redesign local systems for radically better health, care, and economic prosperity in their regions, members of collaborative leadership teams must establish high aspirations and steward a change effort through distinct phases of transformation. They must create the long-term structures for active engagement of all the relevant participants—including residents—in stewarding shared resources. This Stewardship Guide is meant to help individual leaders and multisector collaborations create and sustain successful stewardship structures and change processes to lead regional transformation. It is meant for those who are looking to redesign their systems of health for radically better performance—creating and achieving a transformed system that will help individuals, families, and neighborhoods thrive with better health, lower costs, increased access to care, and improved equity and productivity for all.

Health Literacy Tips by Jennifer Pearce

New Rules for Radical Redesign in Health Care

AIR Roadmap to Patient Family Engagement in Healthcare

Quality Innovation Network (QIN) videos

Domestic Lean Goddess Series 

Healthcare QI Models

Patient Partnerships and Outcomes Brief Literature Review

Aefina Partners

National Academy of Medicine (formerly IOM) Patient Family Health Leaders Resource Compendium

Share this rich resource of programs, practices and research to support the integration of Patient Family Centered Care.  Contributions came from a wide array of experienced leaders.

Should money come into it?

The Change Foundation – March, 2015.  A tool for deciding whether to pay patient-engagement participants.

Transforming Health Care Scheduling and Access

Gary Kaplan, Marianne Hamilton Lopez, and J. Michael McGinnis, Editors; Committee on Optimizing Scheduling in Health Care; Institute of Medicine

PFE Guidelines Ped Pts in Adult Hospitals

A practical Guide for Parent’s and Patients by Chrissie Blackburn, Libby Hoy and Lisa Morrise

Hospitals Increasingly Turn To Patients For Advice

By Shefali Luthra, Kaiser Health News April 27, 2015

Strengthening the Role of Patient & Family Leaders in Health Care Improvement

Strategic Opportunities for the Institute of Medicine

Disparities Solutions Center

Learn about the impactful work going on at the Disparities Solutions Center.  Take a look at the informative Guide produced to support efforts to reduce disparities in healthcare.  https://mghdisparitiessolutions.org/projects-and-programs/cmsomh_norc_/

Patient-Centered Primary Care Collaborative (PCPCC)

Founded in 2006, Patient-Centered Primary Care Collaborative (PCPCC) the is a not-for-profit membership organization dedicated to advancing an effective and efficient health system built on a strong foundation of primary care and the patient-centered medical home. The PCPCC achieves its mission through the work of its five Stakeholder Centers, led by experts and thought leaders dedicated to transforming the U.S. health care system through delivery reform, payment reform, patient engagement, and benefit redesign. Today, PCPCC’s membership has grown to over 1,200 diverse stakeholder organizations who represent health care providers across the care continuum, payers and purchasers, and patients and their families.

Partnership for Patients Resources

American College of Physicians (ACP) Patient Education Resources

When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed.  ACP has produced a series of patient education resources to support patient management of common issues.  These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.

 

CAHPS Cultural Competence Item Set

 

Patients and families authentically partnering in research with support from PCORI

 

Stewarding Regional Health Transformation – A Guide for Changemakers

Transforming our regional health means whole-scale redesign and integration of all the forces that support health and wellbeing. To truly redesign local systems for radically better health, care, and economic prosperity in their regions, members of collaborative leadership teams must establish high aspirations and steward a change effort through distinct phases of transformation. They must create the long-term structures for active engagement of all the relevant participants—including residents—in stewarding shared resources. This Stewardship Guide is meant to help individual leaders and multisector collaborations create and sustain successful stewardship structures and change processes to lead regional transformation. It is meant for those who are looking to redesign their systems of health for radically better performance—creating and achieving a transformed system that will help individuals, families, and neighborhoods thrive with better health, lower costs, increased access to care, and improved equity and productivity for all.

 

Patient Family Health Care Leaders Resource Compendium July 2015

Institute of Medicine

 

 

Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations

 

 

“Strengthening the Role of Patient & Family Leaders in Healthcare Improvement”

PFCCpartners cited as an expert in the Institute of Medicine’s report

 

 

Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit

 

 

 

Advancing the Practice of Patient- and Family-Centered Care in Hospitals  AHRQ

 

 

Guide to Patient and Family Engagement in Hospital Quality and Safety AHRQ

 

 

Health Care Innovations Exchange Advancing Patient and Family Centered Care in Hospitals  AHRQ

 

Health Affairs Patient Engagement Video Series

 

 

AHRQ Toolkit

 

 

Intro to NQF Patient Passport model 

National Quality Forum Patient Engagement Team

Now available for free download in Apple Store and in the Android Market
 
For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCC Partners.  
 
 

IHI Quality Improvement Glossary 

 

 

NEW resource!  Patient Family Engagement Roadmap

Moore Foundation

 

 

Engagement Behavior Framework

Center for Advancing Healthcare

 

 

CHA_Practice_Improvement_Team_Toolkit 

Tools from the Cambridge Health Alliance to engage patients and families into Quality Improvement work.  Thank you, Ziva Mann and Rob Chamberlain, MD.

 

PFE Guidelines Ped Pts in Adult Hospitals

A checklist of questions to promote Safety Across the Board for pediatric patients receiving services in Adult Hospital settings.

Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations

“Strengthening the Role of Patient & Family Leaders in Healthcare Improvement”

PFCCpartners cited as an expert in the Institute of Medicine’s report

Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit

Advancing the Practice of Patient- and Family-Centered Care in Hospitals  AHRQ

Guide to Patient and Family Engagement in Hospital Quality and Safety AHRQ

Health Care Innovations Exchange Advancing Patient and Family Centered Care in Hospitals  AHRQ

Health Affairs Patient Engagement Video Series

AHRQ Toolkit

Intro to NQF Patient Passport model 

National Quality Forum Patient Engagement Team

Now available for free download in Apple Store and in the Android Market
 
For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCC Partners.  
 
 

IHI Quality Improvement Glossary 

NEW resource!  Patient Family Engagement Roadmap

Moore Foundation

Engagement Behavior Framework

Center for Advancing Healthcare

CHA_Practice_Improvement_Team_Toolkit 

Tools from the Cambridge Health Alliance to engage patients and families into Quality Improvement work.  Thank you, Ziva Mann and Rob Chamberlain, MD.

 

PFE Guidelines Ped Pts in Adult Hospitals

A checklist of questions to promote Safety Across the Board for pediatric patients receiving services in Adult Hospital settings.

PFCC Articles of Interest

Improving Quality and Patient Safety for Vulnerable Populations:

http://www.iom.edu/global/perspectives/2013/vulnerablepopulations.aspx

Effectiveness of Strategies for informing, educating and involving patients:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1910640/

The Patient-Centered Medical Home: A Path Toward Health Equity?

http://www.iom.edu/~/media/Files/Perspectives-Files/2012/Discussion-Papers/PatientCenteredMedicalHome.pdf

Person-and Family-Centered Care Initiatives:

http://www.ihi.org/Engage/Initiatives/PatientFamilyCenteredCare/Pages/default.aspx

Guide to Patient and Family Engagement in Hospital and Quality and Safety:

http://www.ahrq.gov/professionals/systems/hospital/engagingfamilies/index.html

Improving Pediatric Safety and Quality with Healthcare Information Technology (Massachusetts):

http://healthit.ahrq.gov/ahrq-funded-projects/improving-pediatric-safety-and-quality-healthcare-information-technology

Shared Decision Making- The pinnacle of Patient-Centered Care:

http://www.nejm.org/doi/full/10.1056/NEJMp1109283

Health Administration Press. Frontiers. “Patient-Centered Care – Seeing Your Hospital Through the Patient’s Eyes.” 26:4. April, 2010.

Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century, Vol. 6. Washington, DC: National Academy Press; 2001.

Balik B, Conway J, Zipperer L, Watson J. Achieving an Exceptional Patient and Family Experience of Inpatient Hospital Care. IHI Innovation Series white paper. Cambridge, Massachusetts: Institute for Healthcare Improvement; 2011. Available on IHI.org.

Shaller, D. Patient-Centered Care: What Does it Take? The Commonwealth Fund, October, 2007.  http://www.commonwealthfund.org/publications/fund-reports/2007/oct/patient-centered-care–what-does-it-take

Patient-Centered Primary Care Collaborative. The Patient-Centered Medical Home: A Purchasers Guide.

https://www.pcpcc.org/guide/patient-centered-medical-home-purchasers-guide

Baker N, Crowe VLH, Lewis A. Making Patient-Centered Care Reliable. Journal of Ambulatory Care Management. Jan-March 2009:32;1 pp 6-13. http://journals.lww.com/ambulatorycaremanagement/Fulltext/2009/01000/Making_Patien t_Centered_Care_Reliable.3.aspx

Schall MA, Sevin C, Wasson J. Making High-Quality Patient-Centered Care a Reality. Journal of Ambulatory Care Management. Jan-March 2009:32;1 pp 1-5. http://journals.lww.com/ambulatorycaremanagement/Fulltext/2009/01000/Making_High_ Quality,_Patient_Centered_Care_a.2.aspx

Kevin C, Moore LG, Shepherd J, Jacobs T, Hupke C. Transforming Care Teams to Provide the Best Possible Patient-Centered, Collaborative Care. Journal of Ambulatory Care Management. Jan-March 2009:32;1 pp 22-30. http://journals.lww.com/ambulatorycaremanagement/Fulltext/2009/01000/Transforming_ Care_Teams_to_Provide_the_Best.5.aspx

PFCC Resource Organizations

Agency for Healthcare Research and Quality

American Hospital Association

Empowered Patients Coalition

Family Resource Center Network of Los Angeles County

Family Voices

Institute for Healthcare Improvement

Institute for Patient Family Centered Care

Partnership for Patients

Patient Voice Institute

Planetree

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