Resources
@IHI WIHI
PFCCpartners’ Lindsey Bourne sharing on @IHI WIHI series on the basics of engaging patients and family caregivers into quality improvement initiatives.
NQF Issues Vital Guidance to Improve Shared Decision Making Between Patients and Healthcare Providers
About NQF
The National Quality Forum (NQF) is the nation’s resource for healthcare quality measurement and improvement. NQF is an independent, not-for-profit, membership-based organization that brings healthcare stakeholders together to recommend quality measures and improvement strategies that reduce costs and help patients get better care.
About NQP
National Quality Partners™ (NQP™), an NQF initiative, is an active forum for NQF members to connect, collaborate, and provide thought leadership on quality improvement strategies to achieve national health and healthcare quality goals. NQP leads practical, action-oriented initiatives to drive meaningful and lasting change for patients and their families. Learn more at www.qualityforum.org.
Patient and Family Advisor (PFA) Survey
The PFA Evaluation of the PFAC can be used by Advisory Program Facilitators who are looking to gauge the Advisor’s perception of the Advisory efforts. This tool is helpful for organizations who are looking to re-energize their Advisory Programs. It will help organizations understand and address some common issues that more mature programs encounter.
National Patient Safety Foundation (NPSF) Call to Action
Preventable Health Care Harm Is a Public Health Crisis and Patient Safety Requires a Coordinated Public Health Response.
National Academy of Medicine Discussion Paper
Patient Engagement: Catalyzing Improvement and Innovation in Healthcare
Safety Across the Board Guide
Partnership for Patients has collaboratively produced this guide to creating a culture of safety in hospitals.
Articles of support for person family engaged care
Adding Value by Talking More by Robert S. Kaplan, Ph.D., Derek A. Haas, M.B.A., and Jonathan Warsh, Ph.D. (NEJM)
The Importance of Being by Abraham Verghese (Health Affairs)
The Conversation Project
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. It’s not easy to talk about how you want the end of your life to be. But it’s one of the most important conversations you can have with your loved ones. The Conversation Project will help you get your thoughts together and to have the conversation.
Workplan Template
We utilize the Workplan in an annual planning session with each of our member health organizations. This allows us the ability to meet organizations where they are in the journey to integrating a person centered healthcare model. It’s important to recognize resources currently available in your organization to support your integration efforts. For more about this tool or about Membership benefits, workplan-template please contact Stephen Hoy at stephen@pfccpartners.com.
Framework for Person Family Engaged Care
American College of Physicians (ACP) Patient Education Resources
When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed. ACP has produced a series of patient education resources to support patient management of common issues. These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.
AIR Roadmap to Patient Family Engagement in Healthcare
10 Questions You Should Ask Your Doctor – AHRQ
Strategic Innovation Engine
Are you working to transform health care? CMS’ Quality Improvement Organization (QIO) program recently established the Stategic Innovation Engine (SIE) to advance health care quality. Its mission is to identify, evaluate and spread proven innovations to achieve the three-part aim of better care, healthier people/communities, and smarter spending.
If your organization has created or adapted an innovative practice in any of these five topics that has improved patient care, the SIE wants to hear from you.
- Managing multiple chronic conditions
- Engaging patients and families as active members of the care team
- Coordinating care within and across settings
- Streamlining patient flow
- Integrating behavioral health into care
Submit an application for consideration of your practice to be spread within the health care community. You’ll receive public recognition for the work you’ve done and broad dissemination of your practice through SIE Communications channels to foster spread throughout the health care community. We will brand the practice with the organization’s name and provide a web badge acknowledging its selection as an SIE-approved practice.
Partnership for Patients Resources
American College of Physicians (ACP) Patient Education Resources
When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed. ACP has produced a series of patient education resources to support patient management of common issues. These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.
CAHPS Cultural Competence Item Set
Patients and families authentically partnering in research with support from PCORI
Stewarding Regional Health Transformation – A Guide for Changemakers
Transforming our regional health means whole-scale redesign and integration of all the forces that support health and wellbeing. To truly redesign local systems for radically better health, care, and economic prosperity in their regions, members of collaborative leadership teams must establish high aspirations and steward a change effort through distinct phases of transformation. They must create the long-term structures for active engagement of all the relevant participants—including residents—in stewarding shared resources. This Stewardship Guide is meant to help individual leaders and multisector collaborations create and sustain successful stewardship structures and change processes to lead regional transformation. It is meant for those who are looking to redesign their systems of health for radically better performance—creating and achieving a transformed system that will help individuals, families, and neighborhoods thrive with better health, lower costs, increased access to care, and improved equity and productivity for all.
Health Literacy Tips by Jennifer Pearce
New Rules for Radical Redesign in Health Care
AIR Roadmap to Patient Family Engagement in Healthcare
Quality Innovation Network (QIN) videos
Patient Partnerships and Outcomes Brief Literature Review
National Academy of Medicine (formerly IOM) Patient Family Health Leaders Resource Compendium
Share this rich resource of programs, practices and research to support the integration of Patient Family Centered Care. Contributions came from a wide array of experienced leaders.
Should money come into it?
The Change Foundation – March, 2015. A tool for deciding whether to pay patient-engagement participants.
Transforming Health Care Scheduling and Access
Gary Kaplan, Marianne Hamilton Lopez, and J. Michael McGinnis, Editors; Committee on Optimizing Scheduling in Health Care; Institute of Medicine
PFE Guidelines Ped Pts in Adult Hospitals
A practical Guide for Parent’s and Patients by Chrissie Blackburn, Libby Hoy and Lisa Morrise.
Hospitals Increasingly Turn To Patients For Advice
By Shefali Luthra, Kaiser Health News April 27, 2015
Strengthening the Role of Patient & Family Leaders in Health Care Improvement
Strategic Opportunities for the Institute of Medicine
Disparities Solutions Center
Learn about the impactful work going on at the Disparities Solutions Center. Take a look at the informative Guide produced to support efforts to reduce disparities in healthcare. https://mghdisparitiessolutions.org/projects-and-programs/cmsomh_norc_/
Patient-Centered Primary Care Collaborative (PCPCC)
Founded in 2006, Patient-Centered Primary Care Collaborative (PCPCC) the is a not-for-profit membership organization dedicated to advancing an effective and efficient health system built on a strong foundation of primary care and the patient-centered medical home. The PCPCC achieves its mission through the work of its five Stakeholder Centers, led by experts and thought leaders dedicated to transforming the U.S. health care system through delivery reform, payment reform, patient engagement, and benefit redesign. Today, PCPCC’s membership has grown to over 1,200 diverse stakeholder organizations who represent health care providers across the care continuum, payers and purchasers, and patients and their families.
Partnership for Patients Resources
American College of Physicians (ACP) Patient Education Resources
When first diagnosed with a chronic condition, such as diabetes, heart disease, or rheumatoid arthritis, patients can often feel frightened or overwhelmed. ACP has produced a series of patient education resources to support patient management of common issues. These resources also help patients ask important questions to their health care professional and reinforce the information provided during a visit.
CAHPS Cultural Competence Item Set
Patients and families authentically partnering in research with support from PCORI
Stewarding Regional Health Transformation – A Guide for Changemakers
Transforming our regional health means whole-scale redesign and integration of all the forces that support health and wellbeing. To truly redesign local systems for radically better health, care, and economic prosperity in their regions, members of collaborative leadership teams must establish high aspirations and steward a change effort through distinct phases of transformation. They must create the long-term structures for active engagement of all the relevant participants—including residents—in stewarding shared resources. This Stewardship Guide is meant to help individual leaders and multisector collaborations create and sustain successful stewardship structures and change processes to lead regional transformation. It is meant for those who are looking to redesign their systems of health for radically better performance—creating and achieving a transformed system that will help individuals, families, and neighborhoods thrive with better health, lower costs, increased access to care, and improved equity and productivity for all.
Patient Family Health Care Leaders Resource Compendium July 2015
Institute of Medicine
Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations
“Strengthening the Role of Patient & Family Leaders in Healthcare Improvement”
PFCCpartners cited as an expert in the Institute of Medicine’s report
Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit
Advancing the Practice of Patient- and Family-Centered Care in Hospitals AHRQ
Guide to Patient and Family Engagement in Hospital Quality and Safety AHRQ
Health Care Innovations Exchange Advancing Patient and Family Centered Care in Hospitals AHRQ
Health Affairs Patient Engagement Video Series
AHRQ Toolkit
Intro to NQF Patient Passport model
National Quality Forum Patient Engagement Team
Now available for free download in Apple Store and in the Android Market For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCC Partners.IHI Quality Improvement Glossary
NEW resource! Patient Family Engagement Roadmap
Moore Foundation
Engagement Behavior Framework
Center for Advancing Healthcare
CHA_Practice_Improvement_Team_Toolkit
Tools from the Cambridge Health Alliance to engage patients and families into Quality Improvement work. Thank you, Ziva Mann and Rob Chamberlain, MD.
PFE Guidelines Ped Pts in Adult Hospitals
A checklist of questions to promote Safety Across the Board for pediatric patients receiving services in Adult Hospital settings.
Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations
“Strengthening the Role of Patient & Family Leaders in Healthcare Improvement”
PFCCpartners cited as an expert in the Institute of Medicine’s report
Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit
Advancing the Practice of Patient- and Family-Centered Care in Hospitals AHRQ
Guide to Patient and Family Engagement in Hospital Quality and Safety AHRQ
Health Care Innovations Exchange Advancing Patient and Family Centered Care in Hospitals AHRQ
Health Affairs Patient Engagement Video Series
AHRQ Toolkit
Intro to NQF Patient Passport model
National Quality Forum Patient Engagement Team
Now available for free download in Apple Store and in the Android Market For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCC Partners.IHI Quality Improvement Glossary
Patient Family Engagement Roadmap
Moore Foundation
Engagement Behavior Framework
Center for Advancing Healthcare
CHA_Practice_Improvement_Team_Toolkit
Tools from the Cambridge Health Alliance to engage patients and families into Quality Improvement work. Thank you, Ziva Mann and Rob Chamberlain, MD.
PFE Guidelines Ped Pts in Adult Hospitals
A checklist of questions to promote Safety Across the Board for pediatric patients receiving services in Adult Hospital settings.
PFCC Articles of Interest
Health Administration Press. Frontiers. “Patient-Centered Care – Seeing Your Hospital Through the Patient’s Eyes.” 26:4. April, 2010.
Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century, Vol. 6. Washington, DC: National Academy Press; 2001.
Balik B, Conway J, Zipperer L, Watson J. Achieving an Exceptional Patient and Family Experience of Inpatient Hospital Care. IHI Innovation Series white paper. Cambridge, Massachusetts: Institute for Healthcare Improvement; 2011. Available on IHI.org.
Shaller, D. Patient-Centered Care: What Does it Take? The Commonwealth Fund, October, 2007. http://www.commonwealthfund.org/publications/fund-reports/2007/oct/patient-centered-care–what-does-it-take
Patient-Centered Primary Care Collaborative. The Patient-Centered Medical Home: A Purchasers Guide.
https://www.pcpcc.org/guide/patient-centered-medical-home-purchasers-guide
PFCC Resource Organizations
Agency for Healthcare Research and Quality
Family Resource Center Network of Los Angeles County
Institute for Healthcare Improvement