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PFA Resources

The following links are to provide support and resources for Patient & Family Advisors.  The organizations listed here often request input from PFAs.  If you have an interest in one or more, please contact PFCCpartners Office so that we can connect you.


Patient and family engaged care—going beyond tactical buzzwords

Editorial in the BMJ  on the NAM PFEC framework.


INSPIRE Portal Link

This portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish. The purpose is to provide easy access to existing tools and resources for this research community.


Decision Guide

GO TO THE HOSPITAL OR STAY HERE? A Decision Guide for Patients and Families.  This Guide will help you understand why these transfers are made and how you can be involved in the decision making about whether to move loved ones from the Skilled Nursing Facility environment to the Emergency Department.  Click here for more information.

Flesch-Kincaid – Literacy Score Instructions

The Flesch-Kincaid test rates text on a U.S. school grade level. For example, a score of 8.0 means that an eighth grader can understand the document. For most documents, aim for a score of around 6.0 to 7.0. This test can be used when you are reviewing any documents that patients or their families will be receiving.

Quality Innovation Network (QIN) videos

Domestic Lean Goddess Series 

Healthcare QI Models

IHI Resources for PFA Summit participants


National Academy of Sciences Resource Compendium 

Please share this rich resource compiled by leading experts and coordinated by the National Academy of Medicine


Should money come into it?

The Change Foundation – March 2015.  A tool for deciding whether to pay patient-engagement participants.


Partnering With Patients, Institute of Medicine



Cambridge Health Alliance is a safety net primary healthcare provider in Boston.  Under the leadership of Ziva Mann and Rob Chamberlin, MD, patients and families have been authentically integrated into quality improvement teams across the organization.


PFE Guidelines Ped Pts in Adult Hospitals

Developed by Parents raising children and young adults with special healthcare needs, this tool can be used by providers and families to create partnership in establishing Safety Across the Board for pediatric patients being treated in Adult hospitals.


PFA Resume Template

Often when Patient Family Advisors are invited to share they stories and contribute to educational events, we are asked for a bio and resume.  This request is made because clinical healthcare providers require a number of hours to keep their licenses current, these are called Continuing Education Units (CEUs).  To meet the requirements for providing CEUs to participants, the organizing group must submit resumes and CVs for everyone who presents.  PFCC Partners has developed this template to help guide Patient Family Advisors in providing their relevant experience.


Citizens for Patient Safety




Empowered Patients Coalition


Family Voices



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