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Engagement Opportunities

Tell us about yourself – take the PFANetwork Advisor Interest Survey!  

As interest and participation in the PFANetwork continues to grow, we are developing a registry to improve our ability to make connections for you to one another for support and to engagement opportunities.  The more we understand your Advisory activities, priorities, and interests, the more we can support your efforts.   Please contact Lindsey with questions at

Click Here to take the Advisor Interest Survey!

PFA Summit Workgroup Update

The Work Groups that were formed at the PFA Summit last year have started their initial meetings and are gearing up to improve the healthcare environment in the five areas below. Advisors and National Partners are working together to carry out the action plans that were developed. The first step these teams are taking is to conduct an environmental scan of what is going on in the environment already, so as not to re-do work that has already been successful. We still invite members of the PFANetwork to join these Workgroups and contribute your ideas.  Please let me know if you would like to be connected to any of the work groups that can also be found below (  Click here for a list of Workgroup meeting dates/times and call in information.
  1. Change the Patient Family vs. Doctor Narrative: The goal for this workgroup is to have patients and doctors on the co-designing the Patient/Doctor encounter. Action items include collecting data about difficult conversations to develop evaluation questions for each doctor visit.
  2. Patient Access: The goal is for patients to have access to their complete records on a patient portal without permission from healthcare professionals. Action steps including research systems, defining HIPPA, clarifying policy, and co-design shared understanding.
  3. Develop National PFAC Connections: The goal for this group is to create business plans and tie patient family engagement to research. Outcomes will include a structure to connect PFAs between organizations across the country and continuum of care into a functioning, self-governed/funded national PFAC.
  4. Improved Communication Training in Medical Education: The goal here is to train patient (Advisors) and staff through an evidence based program to incorporate PFCC into medical education. Outcomes will include healthier patients, cost reduction, and fewer readmissions.
  5. Qualitative: The goal of this workgroup is to develop a plan for collecting, analyzing, and disseminating qualitative data from patients connected to specific issues as lessons for clinicians.


Nominations for the Gustav O. Lienhard Award

Do you know an individual who should be recognized for outstanding achievement in improving health care services in the United States? While here’s your chance to nominate someone for the Gustav O. Lienhard Award which is presented annually by the National Academy of Medicine in honor of Gustav O. Lienhard, Chairman of the Robert Wood Johnson Foundation’s Board of Trustees. For more details go to the following website

Choosing Wisely Patient Champions

There is a nationwide search to recruit and recognize Choosing Wisely Patient Champions, some of whom we will train to become volunteer activists for the Choosing Wisely campaign — and we are looking for your help in finding Champions! Nominate someone by filling out the nomination form and submitting it by April 30, 2017.

Compassion in Action Healthcare Conference

Attend the Compassion in Action Healthcare Conference on June 25-27 in Boston this year at a discounted rate. The conference will feature an experiential approach to organizational culture bringing together clinicians, patients, and health system leaders committed to making compassion a priority in their organizations and communities. Register at and use the promo code, “ACP” to get a 46% discount.

Vanguard Award

The 2017 Hospital Quality Institute’s (HQI) Vanguard Award application process is now open, recognizing outstanding achievement in the areas of patient safety, quality improvement, and patient experience. Strong submissions will demonstrate successful implementation of strategies that have improved performance. For more information about this award and application process go to the HQI website at The application deadline is June 20, 2017.


2017 National Compassionate Caregiver of the Year Award

Nominate a professional caregiver or team for the 2017 National Compassionate Caregiver of the Year (NCCY) Award, which nationally recognizes healthcare professionals who display extraordinary devotion and compassion in caring for patients and families. Professional caregivers and teams who work in any U.S. healthcare setting are eligible for this prestigious award, which celebrates the importance of human connection, hope and compassion in healthcare.
Deadline: Submit your nomination by March 31, 2017 at, where you can find complete award details.

Quality Improvement Basics for Advisors

Integrating Advisors on to quality improvement teams is key to having the patient perspective represented in your organization. However, some of us Advisors are novice to the methods used in quality improvement and how changes are made within our organizations. This curriculum provides the context you need in order to have an impact if you are partnering with your providers on process or quality improvement teams. Interactive components of the curriculum brings adult learning to light and helps Advisors understand some simple methods behind the complex processes used on quality improvement teams in your organization.
Advisors will…
  • Understand organizational culture and change processes
  • Practice a variety of process improvement methods including Lean, Six Sigma, and Root Cause Analysis
  • Learn how data is used for improvement (understanding Run Charts, Control Charts)
  • Understand the role of patients and families in quality improvement
  • Learn how to prepare for partnership on process improvement teams to have the greatest impact
 The next QI Basics for Advisors will be on May 23rd & June 2nd from 4:30-6:30pm PST.  To register or for more information CLICK HERE or contact

Patient Safety Movement Foundation

Patient Safety Movement Foundation (PSMF) is committed to reaching ZERO preventable patient deaths by 2020 and plan to do so by reaching one patient and one healthcare institution at a time. Many organizations have made pledges and committed to supporting this cause. Before PFCCpartners makes that commitment, we would like to hear from the PFANetwork that we serve. Please take a look at the following link that holds their Actionable Patient Safety Solutions (APSS), and let us know your feedback if you would be interested in participating or sharing your story as it relates to any of these topics:

Would you like to get involved with PCORI as a member of an advisory panel?

Applications for the Advisory Panel on Patient Engagement are now being accepted.   They are looking for some great candidates from the following stakeholder groups to fill 6 spots:

– Industry

– Patients, Caregivers, and Patient Advocates

– Researchers

– Purchasers

– Payers

Open Applications Page – Third-party nominations and applications deadlines are Friday, March 31, by 5:00 p.m. (ET).


Georgetown University National Center for Cultural Competence

The Georgetown University National Center for Cultural Competence is pleased to announce that it is now accepting applications for the 2017 Leadership Academy for Cultural Diversity and Cultural and Linguistic Competence.  The Academy will be convened in Santa Fe, NM on June 19-22, 2017. Click here for information about the Academy and the application. dership/2017/

Johns Hopkins Medicine – THRIVE Study 

Johns Hopkins Medicine is recruiting patients and families who have spent time in the adult ICU and on a ventilator to get their insights as to how to provide better care. Eligible patients/families would be asked to participate in a brief interview (via Skype, Zoom of FaceTime) to better understand their perspectives and advice for ICU staff.
Johns Hopkins Recruitment Flyer

Parents, Patients & Family Members invited to contribute!

Pediatrics is interested in publishing articles that reflect the joint perspective of patients, families, and the health care professionals taking care of the family and child. These articles should be written collaboratively and reflect their shared thoughts about a topic related to children’s health care. Examples of topics that articles could address include shared decision-making, use of the Internet or other technologies to improve care, family-centered rounds, health care disparities, or issues related to medical education. These are just examples; the Executive Editorial Board would be willing to consider any relevant manuscript as long as it represents the voices of patients/families and healthcare providers. The manuscript should reflect a partnership amongst the authors.

If an individual patient’s story is to be shared as a narrative, the article should not just focus on that patient’s story and what went right or wrong, but reflect a broad perspective so that the lessons learned can be generalizable to others.  The audience for these articles will primarily be health care professionals, but these articles will also be made free to the public so everyone can potentially benefit from reading the manuscript.

Specific points to consider: It would be acceptable for authors to write sections individually from their unique viewpoint. The article should contain a jointly written introduction and conclusion to ensure an overall collaborative voice.

Specific questions may be directed to Lewis First, MD, editor in chief of Pediatrics at

Strategic Innovation Engine

Are you working to transform health care? CMS’ Quality Improvement Organization (QIO) program recently established the Strategic Innovation Engine (SIE) to advance health care quality. Its mission is to identify, evaluate and spread proven innovations to achieve the three-part aim of better care, healthier people/communities, and smarter spending.

If your organization has created or adapted an innovative practice in any of these five topics that has improved patient care, the SIE wants to hear from you.

  • Managing multiple chronic conditions
  • Engaging patients and families as active members of the care team
  • Coordinating care within and across settings
  • Streamlining patient flow
  • Integrating behavioral health into care

Submit an application for consideration of your practice to be spread within the health care community. You’ll receive public recognition for the work you’ve done and broad dissemination of your practice through SIE Communications channels to foster spread throughout the health care community.  We will brand the practice with the organization’s name and provide a web badge acknowledging its selection as an SIE-approved practice.  Learn more here


Patient-Centered Primary Care Collaborative – Online Map Help

Patient-Centered Primary Care Collaborative (PCPCC) is a Support and Alignment Network (SAN) in a national program funded by the Centers for Medicare & Medicaid Services (CMS), called the Transforming Clinical Practices Initiative(TCPI).  PCPCC is working collaboratively to support practice improvement teams in ambulatory care/outpatient settings to foster partnerships with patients, family caregivers and community-based organizations to achieve common goals of improved care and better health.

PCPCC is looking for patients and families who are interested in sharing their experiences in partnering with clinicians to improve care with others who want to do this work (could include work in hospital or outpatient settings), mentoring new patient/family partners who want to get involved, and participating in educational events – both as learners and speakers.

PCPCC is also launching an online map fairly soon and would love to get your input on the information they’re tracking and how user friendly it is. You can access the map here.



100 Million Healthier Lives

100 Million Healthier Lives is an unprecedented collaboration of change agents across sectors who are pursuing an unprecedented result:

Mission: 100 million people living healthier lives by 2020.

For more information on the 100MHL project and how you can get involved, check out their website: and their HealthDoers Community.


Are you a Medicare Beneficiary with an interest in serving as a Beneficiary Family Advisor?

The Quality Improvement Network- Organization (QIN-QIO) are seeking Regional Representatives to partner in co designing programs and projects to improve care for all medicare beneficiaries.  To receive an application, please send a request to  or connect directly with the QIN QIO serving the state you live in.  Learn more about the QIN-QIOs


Do you live in Virginia or Maryland?

VHQC, the Quality Improvement Network for Virginia and Maryland is currently recruiting Advisors to launch their Patient Family Council.  If you are interested, please see the flyer below, which includes a link to the application.

To become a member of the PFANetwork, please fill out the information below:

One Comment
  1. Ziva Mann permalink

    What and where is the LEAPT event? The CMS website is unclear.

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