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Patient Family Advisory Programs

2020 PFA Summit Outcomes

Learn more about the barriers and priorities identified at the PFA Summit in the Outcomes Report.

Compensation Work Group Resources

Compensation Guidance

Comensation Work Group Environmental Scan

Engaging Patient Family Advisors in Emergency Response

Intro to NQF Patient Passport model 

National Quality Forum Patient Engagement Team

Now available for free download in Apple Store and in the Android Market
For a guide to support adaptation of the Patient Passport in your local healthcare organization, please contact PFCCpartners.  

Patients and families authentically partnering in research with support from PCORI

Patient and Family Advisor (PFA) Survey

The PFA Evaluation of the PFAC can be used by Advisory Program Facilitators who are looking to gauge the Advisor’s perception of the Advisory efforts. This tool is helpful for organizations who are looking to re-energize their Advisory Programs. It will help organizations understand and address some common issues that more mature programs encounter.

Patient-Centered Primary Care Collaborative (PCPCC)

Founded in 2006, Patient-Centered Primary Care Collaborative (PCPCC) the is a not-for-profit membership organization dedicated to advancing an effective and efficient health system built on a strong foundation of primary care and the patient-centered medical home. The PCPCC achieves its mission through the work of its five Stakeholder Centers, led by experts and thought leaders dedicated to transforming the U.S. health care system through delivery reform, payment reform, patient engagement, and benefit redesign. Today, PCPCC’s membership has grown to over 1,200 diverse stakeholder organizations who represent health care providers across the care continuum, payers and purchasers, and patients and their families.

Patient Priorities Care

Patient Priorities Care have redesigned the resources page with newly added tools to help clinicians identify patient’s health priorities, and align those priorities with decision-making and care. Resources are also available to guide patients and caregivers in the Patient Priorities Care approach. Visit for more information.

The Conversation Project

The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.  It’s not easy to talk about how you want the end of your life to be. But it’s one of the most important conversations you can have with your loved ones.  The Conversation Project will help you get your thoughts together and to have the conversation.

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